WP 9 – Patient Co-creation
The WP of Citizen & Patient Co-creation is crucial to make sure that the voice of the patient stays in the center of the transformation we envision. The Network Against Cancer leads the work.
Key Activities & Deliverables:
Co-design clinical trial synopsis
Influence study protocol with outcome measures that matter most to patients
Involve patients as co-creators of material shared during and after precision cancer medicine treatment as well as eConsent co-development
Increase awareness among patients around precision health and its implications with a special regard to information derived from genetic testing, ethical considerations, and integrity during the process
Knowledge expanding efforts for citizens and patients around information, consent and participation in healthcare relating to precision health
Mappings of awareness increasing activities, creation of educational material and guidelines for patient representatives